The Ewing's Sarcoma and Pediatric Cancer
Support Group Resources Page
from The Cure Our Children Foundation

Lainie, Alon, Lilah and Barry Sugarman Alon Sugarman During Chemotherapy

 

    In Honor of Alon Sugarman,
20 Years Old, Alive and Well

This site maintained by Barry Sugarman, B.S.ENGR.
Father of Alon Sugarman, Diagnosed March 6, 1998
with Ewing's Sarcoma of the Distal Femur.

 


Original Content Pages:

What To Do at the Time of Initial Diagnosis
Report a Late Diagnosis - This Contributes to our Research Programs
New Drugs and Treatments for Ewing's Sarcoma
*New*  New and Emerging Therapies Web Log (Blog)

A National Model Donated Sick Leave Plan

Sibling Support Home Page

The Use of Nutrition and Dietary Supplements as Complimentary Care
in Children with Cancer

Sports and Recreational Activities for Children with Physical Disabilities

*New*  How to Succeed as an Amputee and Amputee Resources Page

Mouthsores: Causes, Treatments, and Potential New Treatments

Preparing your Home for the Chemotherapy Patient
Preparación del Hogar para el Paciente de la Quimioterapia


Take My Hand Project--Direct Assistance Program
Take My Hand Project--Financial Assistance and Scholarships Information Page

How to Help Cancer Families Directly with their Social Needs During Treatment
Checking on and Selecting your Doctor and Hospital
 Stem Cell Transplants
Dealing with Nausea or Loss of Appetite

Special Education and Disability Resources

Coping with Shock, Stress, Anxiety, Grief, and Loss
How to get Drugs that are not  FDA Approved Yet

*New* Join our Foundation Mailing list to Receive News and Site Updates

Foundation Vision Statement
        More Pictures of Alon and Family       Alon's Story          

Online Donations to our Foundation

Doctors and Medical Professionals, Please Read Our Book:  Prompt, Accurate Diagnosis of Pediatric Cancer and Leukemia for Pediatricians, Orthopedists, and Family Practitioners (Paperback) by Andrew Pendleton (Author), Jennifer Minigh (Author), Lainie Shapiro (Author), Barry Sugarman (Author)

 

Press Release July 19, 2005

Press Release May 4, 2004

Press Release May 12, 2003
Press Release February 10, 2004

 


**This site and our organization support the traditional medical approaches to treatment of Ewing's Sarcoma because they are proven effective in numerous long term clinical studies.  Alternative and Complimentary treatment information is provided only for use in conjunction with traditional approaches.**

**This guide has been written for educational purposes only, it cannot be used for
diagnosing or treating a health problem or a disease. If you have or suspect that you or your child may have a health problem, you should consult your doctor.**

World Wide Web Links:

View the most recent write up from the National Institute of Health's National Cancer Institute:

Conduct Your Own Journal Research for free:

National Institute of Health Clinical Trials Listings:  Important Note--Please Check all categories especially the categories double asterisked. The first two categories contain most of the lung metastatic or recurrent Ewing's/Solid Tumor studies. When in doubt, call the principal investigator listed.

More Public and Private Clinical Trials Sites:  

Second Opinions:

Mailing Lists:

Oncology:

Bone Marrow and Stem Cell Transplants Information (BMT):

 Associations and Support Organizations:

Patient, Survivor, and Memorial Home Pages

Research Sites:

Spiritual Uplifts:

Alternative and Complimentary Therapies:

Treatment Facilities--United States:

Orthopedic and Surgical Links:
         *Surgical Limb Salvage Alternatives to amputation

Medical Supplies:

Pharmaceutical Manufacturers and the drugs that they make that are used in the Ewing's Sarcoma Protocol:

Important Books:

Please use our link below to search Amazon.com.  Also, we have listed individual title recommendations below the search link. Our non-profit foundation will receive a commission on each purchase initiated from these links. 

Early Detection:

Home Care: 

Publications:

This site last updated on December 30, 2011