and Edited by Barry Sugarman, B.S.ENGR., Dr. Lainie Shapiro,
and Alon Sugarman
This page has been designed to help answer your questions, introduce new information, and guide you to the places, sites and companies that can help you. Throughout this guide you will find helpful articles, amputee success stories, information on prosthesis, and much more. We finish up with a comprehensive list of resources covering everything from prosthetics to prosthetic tattoos and more! We hope you find this information helpful, valuable, and we are happy to help provide it to you. This page has been designed so that you can read it online or print it off. Please feel free to share it with those you feel could benefit from the information. Wish you the best of luck with your journey and would be happy to hear any feedback from you at
Amputation Overview - What You Need to Know
How to Succeed Following an Amputation
Connecting With the Community After an Amputation
Think Amputees Can't Play Sports? Think Again!
Pain Management for Amputees
Amputations: What to Expect
An Amputation Success Story: Amy Schmitt
Touch Bionics Helps Pave Way for Amputees
Prosthetics: What You Need to Know
Dan Horkey Gives Prosthetics Unique Identity
Checklist of What to do Right Before and Right After an Amputation
Links Resource Section
**This guide has been written for educational purposes only. It cannot be used for diagnosing or treating a health problem or a disease. If you have or suspect that you or your child may have a health problem, you should consult your doctor. You should consult your child's doctor before he or she begins any exercise or sports program. Additionally, this site is not intended to provide medical or legal advice or opinions, or financial advice or opinions. If you need legal advice or opinions, please consult your attorney. If you need medical advice, please consult your doctor. If you need financial advice, consult a qualified accountant.**
Mark Twain was quoted as once saying, "The secret of getting ahead is getting started. The secret of getting started is breaking your complex overwhelming tasks into small manageable tasks, and then starting on the first one."
If you were to ask amputees who have successfully moved beyond the procedure to regain their life, there is a good chance that most would agree with him. If there is one thing that an amputation does, it definitely creates some challenges. But for those who break those complex challenges down into smaller, more manageable goals and tasks, success usually lies ahead.
Amputations are not exactly something that people think about much. That is until it hits home. When they or someone they know needs an amputation, they then enter a whole new world. A world that involves words and procedures with which they are likely not very familiar. It is important for families to be able to find important, helpful, and credible information on amputations in order to know all they can.
This amputation resource section aims to be a comprehensive source of information for you and your family. We have created an in-depth area that contains everything from success stories to articles on a variety of topics, a glossary of amputation terms, and a directory of amputation links. In other words, if it involves amputations, you should be able to find it here, or at least use this site as a starting point to find the information you need.
It is estimated by the National Limb Loss Information Center that there are approximately 1.7 million people who are currently living with the loss of a limb. It is estimated that in America, one out of every 200 people have had an amputation. This adds up to around 1.7 million people living with the loss of a limb. So just why do all these amputations occur? There are a variety of reasons, with the majority of them being related to complications with diabetes, which creates problems with the vascular system.
Surgical amputations typically fit into one of four categories, which include:
Disease (Primarily Diabetes)
Accidents and Wars
Over 80 percent of amputations are directly related to vascular problems associated with the blood vessels. Around 97 percent of these involve a lower limb amputation. When it comes to traumatic amputations (those that occur due to injury or accidents), over 68 percent of them involve an upper limb. For those amputations that are cancer-related, a third of them usually involve the lower limb above or below the knee. Over 58 percent of those with congenital defect amputations involve an upper limb.
Types of Amputations
There are a variety of amputations that can take place. Here is a breakdown of the different types and some information about each. Upper body amputations can include everything from fingers to the hand, to the upper or lower part of the arm. It can also include a shoulder disarticulation, or an amputation of the entire arm.
On the upper body, fingers are one of the more commonly amputated body parts. The thumb is the most commonly amputated digit on the hand. When this happens, the person has challenges that involve being able to grasp. If other fingers are lost, the person can usually still grasp, but they are not able to do it as well.
On the lower body, people may have a toe or more amputated, the lower part of the leg, or even the entire leg. Additionally, some people undergo a hip disarticulation, where the entire leg bone is removed. When it comes to feet, the most common amputation is of a toe, and the reason for it is frostbite. Losing a toe may not seem like it would pose much of a challenge, but those who have had one amputated realize that it actually causes issues with balance and walking.
Where to Go from Here
Any type of amputation, regardless of the cause or where it is on the body, is going to bring about a lot of questions. This is normal and to be expected. It is important to always take the time to ask the doctor as many questions as you need answered. Never feel as though you are bugging someone or posing too many questions.
It is also important that you do as much research as you can so that you know what to expect and where to find help and the answers to any questions you may have when you are not with the doctor or physical therapist. Again, this site will be able to answer a lot of your questions or point you in the direction of where you can find the information you need.
Some of the things you may want to do throughout this process include:
Find an amputee support group in your area. This can be especially important for being able to meet with others who are going through the same thing or have been there before and are further along in their journey. Contact your local hospital and speak with the patient advocate, as well as the social worker, who may be able to point you in the direction of one, or you may find one by contacting an amputee organization. If you cannot locate one in your area, don't hesitate to start one. Most likely there are others in your community who could benefit from the group as well.
Join some of the amputee organizations (links below) so that you can remain current regarding the news, information, and events that take place. You may find that the information is helpful and that you feel more in the loop when it comes to the information that comes out on amputations and resources for amputees.
Get the psychological help that is needed in helping to make the transition. Many people benefit from speaking with a psychologist in order to work through all the feelings and emotions that are associated with undergoing an amputation. It is important to note that when there is physical pain control and relief it helps deal with a lot of the psychological issues as well.
It is well known that one of the issues that many amputees experience is Post Traumatic Stress Disorder (PTSD), which is an anxiety disorder and happens after a traumatic event that involves injury or death. PTSD can be seen in a variety of symptoms, which include anxiety, nightmares, emotional numbing, detachment, feeling hopeless, and being stressed. It is important to work with a doctor or psychologist in order to address PTSD. You can find a mental health physician by contacting the American Psychiatric Association (Phone: 703-907-7300, 703-907-7300 ) and The Therapy Directory (Phone: no phone, online only).
Anxiety is often a crucial issue with amputees, so it is important to help them find effective ways to address it. In addition to seeking treatment with mental health professional or psychologist, there are some very helpful things that can be done to help reduce anxiety, including meditation, yoga, and listening to music. Many people also find it helpful to journal in order to reduce anxiety and address feelings. It is important for the amputee to try various things to find out which one helps.
Many people have found Eye Movement Desensitization and Reprocessing (EMDR) to be a useful route to helping to deal with phantom limb pain, as well as the psychological issues that arise following an amputation. The psychological issues that follow an amputation are common and need to be addressed. EMDR is a psychotherapy approach that incorporates cognitive, interpersonal, psychodynamic, experiential and body-centered therapies. It involves eight phases of treatment and is estimated to have helped over two million people with various degrees of psychological stress. Two top resources for this type of therapy include EMDR Institute, Inc. (Phone: 831-761-1040, 831-761-1040 ), and the EMDR International Association (Phone: 866-451-5200, 866-451-5200 ).
As with all things in the medical community, the field of amputations will continue to be shaped and grow. Even as more people become amputees themselves, they find areas where they can be of service to others who have amputations, and they create businesses and services that serve that need. Because of this, it is important to remain current on what goes on in the medical community regarding amputations.
Whether it is a new procedure, research, prosthetic, or tool that can be of service, improvements are always being made. Never stop learning all that you can because everything you learn can be put to use.
An easy way to keep up on the latest news and research is to create a news alert in Google. You can do this simply, by logging on to Google Alerts and adding your keywords (e.g., amputations, amputee, prosthesis, prosthetics) to the criteria. That way, the latest news will be delivered right to your inbox. Also, you can periodically type the keywords into the search engines just to see what new comes up. These little efforts will help keep you informed and learning!
When it comes to pushing on and succeeding in life after an amputation has taken place, there is no one sure-fire way that will get you there. But there are some common traits that those who have been successful following an amputation share. If you can adopt some of those traits, or help your family member if they have had the amputation, your chances of success will be greatly increased.
There are several people who have become successful motivational speakers following having an amputation. Most of them have persevered because of their attitude toward themselves and the challenges that they faced. Of course, this all comes after the procedure is done and the rehabilitation is in place.
You may have even received a prosthetic at this point. There is no right time to start focusing on success following an amputation. The sooner you can do it, the better.
Here are some of the aspects to focus on when it comes to being successful following an amputation:
Determination. Having a mindset that you can do things and that there are no limitations can take you a long way. As Henry Ford once said, "Whether you think that you can, or that you can't, you are probably right." We usually have the ability to do what we set our minds to. So if you believe you can do things, you will most likely be able to! There are people with prosthetics that carry on normal activities, including hiking in the mountains and playing sports!
Attitude. Maintaining a positive attitude in life, not just when it comes to amputations, is essential to success and enjoying life. A positive attitude can help you stay happy, upbeat, and achieve what you set your mind to. An effective way to maintain a positive attitude is to write a positive affirmation and post it someplace that it will be seen frequently. Then, it is important to read and recite it daily. An example of a positive affirmation might be something like "I am confident, able and determined to succeed." A negative attitude will hold you back and may even lead to health problems brought on by the stress. Always focus on maintaining a positive attitude. The best way to do this is to remind yourself of all the things in your life that you are grateful for on a daily basis. Some people even keep a gratitude journal for this purpose. Another way to maintain a healthy attitude and help you succeed is by helping others.
Support. It is important to surround yourself with positive people if you are the amputee. If it is a family member that is an amputee, it is important that people remain positive and provide a supportive environment. Attitudes are catchy, so those who are around the amputee should focus on being positive and providing encouragement.
If you are like most people you are concerned about where you will get the funds to pay for the prosthesis. It can be a costly route, especially if there are associative services included, such as wheelchairs, ramps and additional equipment. The best route to take is first determine what you will need, such as if you need equipment in addition to the prosthesis.
Once you have an assessment of that you will need to start considering fund sources. Some funding sources may require a justification statement, especially if you are working with public or private insurance. Depending on age, some people may qualify for Medicare assistance. In addition to inquiring with your insurance provider, there are additional resources you will want to consider, including social security benefits, state disability benefits, and veteran's benefits.
What works for one person to be successful following an amputation may not be what works for the next. Some people find comfort in attending church, while others become successful in finding their purpose in life. When you focus on what you want, rather than what you don't want, you will greatly increase your chances of success and living the life you want, even following an amputation!
See the link section for a wide range of helpful related links.
Many people who have an amputation go through a period where they want to avoid others. They may feel embarrassed or afraid of how others will react to them, and some don't want to explain everything to others or want lots of sympathy. They may also have reservations about how they will perform with their new prosthetic in front of others. While it may be common to want to withdraw, it isn't necessarily the best route to take!
Getting involved in the community and the local amputee community is an effective way to help heal and be successful. Being involved with the community will help to provide new perspective, create a network of friends, and help to show others that those with amputations are out and about and making their way!
Here are a few ways to get connected with the community following an after amputation:
Support groups. Check with your local hospital to see if they have an organization for amputees. If they don't, speak to them about starting one. Chances are, there are others in the area that can benefit from the network. If they have no interest in starting one, create one yourself. All you need to do is set the time, date, and place for meetings and get the word out. Many local libraries, churches, and temples give free space for these types of groups.
Google resources. Google can be a great resource for finding people, information and more. You can look at Google Groups to find amputee groups, and visit Google Blog Search to find blogs covering a range of amputee topics.
Online groups . If you check with places like Yahoo Groups, you will find that there may be online support groups available, or you can create one. An online support group of amputees will give you the chance to converse with others via e-mail. They can be a great resource for exchanging information, ideas, stories, and inspiration. For example, the Yahoo group Amputee Moms (no phone, online only) has over 7,000 members. Through e-mail they share such things as support, photos, discuss problems, joys, and more.
. There are many social groups that are geared toward amputee's,
Less Than Four (an online community for amputees) (no
phone, online only),
Disabled Planet (member site, news, information, and
more) (no phone, online only),
Amputees Helping Amputees (a support group) (Phone:
410-414-4670, 410-414-4670 ), the
International Child Amputee Network (no phone, I-CAN
P.O. Box 514 Abilene, TX 79604-0514), and Dating Amputees (a singles site) (no phone, online only). You can also find information, like this article here, on the " 10 Best Amputee Support Groups and Resources Sites."
Facebook . Many of the organizations, groups and resource sites also have a presence on Facebook. So if you are on Facebook, look them up and "like" them so that you can keep informed and in the loop.
Meetup. The site meetup.com is a great place to look for amputee resource groups (or to start one). There are amputee meetup groups in several places around the country.
Forums. Another option for communicating with other amputees online is forums. They are usually free, easy to use, and will allow you to post and respond to questions. It is a great resource, especially for those with questions who are looking for a response from someone who has been there. Some forums include the Amputee Communicator Forum and the forum for the Amputee Treatment Center (Phone: 585-343-4154, 585-343-4154 ). You can usually find information on everything from pain management to insurance information.
Being involved with the community, whether in your neighborhood or online, can be a great resource for any amputee. It's a great way to chat with others who have had a similar experience and to find the answers to the questions you have. Don't hesitate to become involved, you will be glad you did!
When someone has an amputation they may feel that they will no longer be able to engage in their favorite activities or sports. But that couldn't be farther from the truth! In fact, there are amputees who engage in just about every type of sport out there!
Some of the sports in which amputees still engage, even with lower limb amputations, include jogging, golf, surfing, skiing, bicycling, skateboarding, swimming, and others. Basically, you name it, there are amputees still doing it! There are even amputee scuba diving certifications and associations, like the Handicap Scuba Association (Phone: 949-498-4540, 949-498-4540 ), and Disabled Divers International (Phone: +4577340234, +4577340234 ),The War Amps (Phone: 800-465-2677, 800-465-2677 ) and the International Association for Handicapped Divers (Phone: 866-685-4243, 866-685-4243 ).
Many amputees are not allowing their amputation to keep them from getting involved in sports activities. There are many people who have become involved in running, skiing, bicycling, and swimming, among other sports. In April of 2010, Amy Palmiero-Winters, a leg amputee, became the first ever amputee to be named to the U.S. national running team.
Tyler Hyatt, who is the co-owner and player for Amp 1 Standup Amputee Basketball (no phone, online contact only), plays basketball and helps run the only standup competitive amputee basketball league that there is.
"The one thing that we want people to know about Amp 1 Basketball is that just because we are amputees and people think we are handicapped, we are true athletes and we deserve the same attention and respect as able body athletes," he says. "Everyday we practice basketball like other basketball players, but we also train and practice harder then normal athletes because not only do we have to practice the game of basketball we also have to practice and learn how to maneuver our prosthetics to run, jump, shoot and move just as fast as our opponents."
Whether or not you are an amputee should not be a factor in whether or not you engage in sports. Most prosthetics today suit people playing sports just fine, and with some practice, you can actually become quite good at them (even non-amputees need to practice to be good at sports). Getting comfortable with your prosthesis is the first step to being able to play sports. It is important to note that some people have a separate prosthesis that they use just for particular athletic or sporting involvement. Some, such as the Ossur Cheetah (Phone: 800-233-6263, 800-233-6263 ), is built for sporting activities, and helps to make activity more comfortable and helps with shock absorption.
"If you are interested in playing stand up basketball our advice is to start off with taking small steps. First make sure you are wearing prosthetics that can handle the abuse that basketball requires," says Hyatt. "We suggest a Renegade carbon fiber foot from Freedom Innovations, all our players wear these feet because they can handle the abuse we give them as well as they give you great return in the energy you put into them."
Visit the link section of this page to find a variety of sports-related links for those amputees who are interested in sports. There are sports organizations for amputees and others who have excelled in the area. When it comes to playing sports as an amputee, the sky is the limit. While it may pose a few more challenges, it is by far not at all off limits.
Whether you get involved in sports as an amputee just for fun, want to participate in organized games, or join sports associations, the options are there. In addition to the links below that will take you to resourceful places, you may also want to log into YouTube and do a search for amputee sports. There are many amputee sports videos on YouTube, which will give you an idea of just how successful people have been in continuing their favorite sport, as well as taking up new ones!
"As amputees we may move slower then our opponents but we can always out shoot them. From there keep practicing and conditioning and never give up," adds Hyatt.
When it comes to amputee resources, one of the things that many people look for is information on pain management. The reality of amputation is that at some point just about everyone will experience some pain. While it is to be expected, it is important to determine what type of pain it is, where it is coming from, and what can be done about it.
Pain management is a major issue in health care, reaching every corner of the country. Most amputees have likely been informed that there is going to be some pain following their amputation process. But there may be pain beyond that initial period as well.
Here is a breakdown of some of the various stages of pain that some people may experience with their amputation:
Post-operative pain. This is the type of pain that follows the amputation. It happens because of the trauma that has taken place to the nerves and bone. It will usually resolve as the healing process continues. For this type of pain, amputees are usually prescribed a pain killer over the course of at least the 4 to 6 weeks following the amputation.
Extrinsic residual limb pain. This type of pain that amputees may feel is usually related to the prosthetic. You may experience pain in the prosthetic area, which can be caused by an improperly fitted prosthetic or it may be due to the type of material from which it has been made. It can usually be remedied by having modifications to the prosthetic made, including modifying the socks and sock plies.
Phantom pain. This is the feeling of pain or sensation that all amputees have in the limb that has been amputated. The term has been used since the Civil War, when it was first noticed and named by a surgeon. Phantom pain is most prevalent during the first year following an amputation. Researchers believe that those with congenital amputations, as well as those who get them early in childhood, are not as likely to experience phantom pain. They believe that the phantom pain is related to the way the brain has mapped the body. If one is in pain before the amputation, the pain after the amputation may end up lasting longer. Also, there are sometimes increased pain receptors at the site of the amputation. The mirroring technique is treatment that people have been successful with in addressing phantom pain following an amputation. An excellent resource for addressing phantom pain is the Center for Brain and Cognition Department, Physiology and Neuroscience at the University of California, San Diego (Phone: 858-534-624). Additional methods for treating phantom pain include pharmacological intervention, surgical treatments, physical therapy, and alternative techniques, such as hypnosis and acupuncture.
Residual limb pain. Many amputees end up feeling pain in the residual part of the body where the amputation has occurred. This is because of the massive disruption that has taken place to the area tissue. Ongoing, it can also be caused by never damage.
According to the National Institutes of Health, there are some conditions that can make phantom pain worse for amputees. These conditions include being too tired, stress, infection, changes in the weather, poor blood flow, swelling on the remaining part of the limb, and putting excessive pressure on the remaining part of the limb.
Pain for amputees can come in a variety of forms, including sharp, shooting pains, cramping, burning, and aching. It can also feel hot or cold, tingly, or even numb.
Some pain that amputees experience may last a few days, while others can be chronic, lasting a long time. It is important to work with your doctor whenever you have any type of pain. They will determine the source of the pain, which will help them determine the best route to take to alleviate it.
Note: See the links resource section for a listing of those specialists in pain management.
Regardless of the reason why someone may need to have an amputation, it will create a lot of questions. People need to know what to expect before and after the procedure. The better you are prepared and know what to expect, the better you will be able to handle what comes your way.
Here's an idea of what can be expected throughout the amputation process. Of course, this information will vary some depending on the type of amputation, as well as the surgeon, among other variables, but it provides a general idea of the process:
Before. When the amputation is first discussed, before it takes place, you should receive a lot of information about it. The doctor should be able to give you an in-depth overview of what to expect leading up to it, as well as what the procedure itself will be like. They should also be able to answer any questions you have about what to expect following the amputation and through rehabilitation.
During. This is the process that will be determined by your surgeon and the hospital where it is being performed. Typically, you will be prepped for surgery, the surgery will be performed, and you will remain in the hospital for a period of time that could be anywhere from 3-7 days. During this hospital stay, they will be monitoring your progress, providing appropriate pain management, and ensuring you are successfully recovering.
After. Following the amputation, you will continue with prescribed pain management, as well as begin rehabilitation. The rehabilitation period will likely have you working with such people as a physical therapist and an occupational therapist. Once your amputation area has made a sufficient recovery, you will also meet with prosthetists and discuss your options and be fitted for a prosthetic. Once you receive your prosthetic, you will continue with rehabilitation to learn how to integrate using it into your life.
Of course you will find various bumps along the road throughout this amputation process and recovery period. But these challenges may differ for each person. Some people may include doing such things as meeting with a psychologist to discuss the mental health aspects of undergoing an amputation. Others may need to meet with their employer to discuss how the amputation will impact their job and if any changes will need to take place. The more you know about what to expect, the better off you will be!
As Amy Schmitt, of Michigan, was cruising through her 30s, the last thing on her mind was an amputation. It's not something she ever thought about, until, that is, the day she heard the words first spoke to her in regard to her lower right leg. Like most amputees, she went on an emotional roller coaster throughout the process, but came out on top!
For nearly eight months, she had a misdiagnosed blood clot in her lower right leg. She knew there was something wrong, as she was in a lot of pain, but nobody seemed to be able to get to the root of the problem. As it turns out, after months of seeing specialists and getting misdiagnosed, she found out that she has a blood clot that was caused by her birth control pills. At that point, because the blood clot went undiagnosed for so long, she was told she would need an amputation of her lower right leg.
"My first thoughts going into the amputation were that my life was over," she says. "I am never going to be able to paint my toenails again! I literally thought my life was going to be over."
Long before the amputation had been brought up someone had mentioned the word to her, and she had actually said she would commit suicide if she had to live without her leg. Little did she know that just months later she would be undergoing an amputation of her lower leg.
"The most difficult part of it was accepting that I would no longer be a 5-mile a day walker and that I would have to learn to do things a bit differently," she adds.
But things didn't turn out quite as bad as what she had expected, as with many amputees. Often times, amputees imagine an array of negative outcomes but find out in time that things turn out much better than they had initially expected, which is exactly what happened to Amy. About seven weeks after her amputation, she received her prosthetic.
August 2011 will be two years since her amputation took place. Since that time, she has adapted well. She has returned to work and has learned to do things differently. Some things still pose a challenge for her, such as climbing stairs, since she lacks the ankle flexibility that she used to have. But she has not let an amputation or having a prosthetic slow her down or hold her back.
"There is not much I don't do," she says. "People are surprised when they hear that I swim, ride my bike, and drive without aid. I think the thing that made me maintain a positive attitude was my family and friends. From the first day, they were all so supportive and accepting."
Likening it to a bump in the road that everyone moved past, she also felt that if she sat around crying, that's what those around her would do. So she tried maintaining a positive attitude and didn't look back. She also has advice for those who may be preparing to undergo an amputation or who have had one.
"Don't think it is the end of the world, it is the end of life as you know it, but life goes on and you are in control of your destiny," she says. "You can cry about it forever, or you can deal with it and move on."
When it comes to prosthetics, there are a handful of companies that are leading the pack and providing the latest technology. One of these companies is Touch Bionics, a company that specializes in upper-limb prosthetics using the latest technology. Since launching their i-LIMB Hand in 2007, they have shipped over 2,000 units of them.
The i-LIMB Hand is the first fully articulated bionic hand in the world. It is helping amputees in all corners of the globe to be able to achieve greater independence in their daily lives. The hand, which looks and acts like a human hand, has been designed to use a myoelectric (muscle signal) that can open and close the fingers. It's a prosthetic that leaves many of its users feeling pleasantly surprised.
"Fittings with our devices are often emotional occasions," says Danny Sullivan, the communications manager for Touch Bionics. "One of the key reasons for this is because it can be the first time for a very long time that a patient has looked at their hand and seen the fingers moving and bending in a way that more closely reflects the action of a human hand than previous prostheses."
When it comes to what else is new in the world of prosthetics, Sullivan reports that there are some key advances being made in the area of control. These advances are aimed at allowing users to gain a higher level of function with the prosthesis. Last year, Touch Bionics launched the i-LIMB Pulse, designed to allow for more grip strength in each digit.
As companies continue to strive for technological advances in the field of prosthetics, it is important to note that it will provide more options, but it can also create a few more learning curve challenges.
"It's important to remember that all of this new technology means increased complexity, so ongoing therapy and support becomes as important as the technology itself in terms of gaining positive patient outcomes," added Sullivan.
In the area of lower extremity prosthesis there has also been new developments. One prosthesis, the Otto Bock Genium Knee (7720 Cardinal Court San Diego, CA 92123 Phone: 800-55-SCOPE, 800-55-SCOPE ) was in the making for 11 years with the Department of Defense. It is now available to the public the microprocessor controlled knee is the most sophisticated available. The power in the knee lasts for up to four days and the sensors even allow the person to walk backward.
The Otto Bock Genium Knee offers five modes, so that they can be programmed for specific activities, such as bicycling, skiing, table tennis, and inline skating. It has also been designed to be more water resistant than the C-leg (a computer controlled hydraulic knee and foot system).
It is the advancement in the microprocessor knees that is bringing about the more sophisticated prosthesis. In turn, they are giving people more opportunities to do more and engage in the activities that they have always enjoyed (or take up new ones)!
Today there are many prosthetic options available for amputees. Even with all that is available today, there is continued research and development that is underway, which will only further the number of devices that will be available in the future. Most people have questions when it comes to getting fitted for, or getting used to, their prosthetic, which is completely normal.
One of the most challenging aspects that amputees may find is in being able to locate enough information to answer all of their questions. Such things as how to take the prosthesis on and off and how to properly clean it may seem trivial, but for those needing the answers, it can leave them feeling lost. Because of this, Todd Norton developed a Prosthetics 101 (P.O. Box 7335 Jacksonville, FL 32238-7335 phone: (904) 716-5149, (904) 716-5149 ), an instructional DVD and provides advice where he can.
"The biggest myth is that a prosthesis is painful to wear," says Norton. "A prosthesis certainly may require some acclimation, but it should not be painful to wear."
Norton, who is the vice president of prosthetics at Bremer Brace of Florida (3627 University Blvd. S # 425 Jacksonville, FL 32216 phone: (904) 346-0086, (904) 346-0086 ), has been working in the prosthetic field since 1993. Being a prosthetic assistant, he has helped many people along the way. In addition to providing assistance to those in the Jacksonville area, where the rehabilitation office is located, he has the video that helps people worldwide. He also does volunteer work in the field by doing mission trips to Central America to provide free prosthetic devices to those who need the aid.
Having so many years in the industry, he has advice to offer those who are getting a prosthetic. First, he says it is important to realize that the residual limb will change in size, and because of this, an amputee has to learn how to manage their volume change in order to keep the prosthesis fitting properly. In addition, he offers tips he has learned through years of experience in working with amputees.
"As cliché as it may sound, an amputee has to just take the process one day at a time and one step at a time," adds Norton. "They will need to be determined, yet patient at the same time."
When amputees get fitted for a prosthetic and begin using one, they often feel as though this new extension is not really a part of them. It can also be a period of time when self esteem begins to slump and morale sags. This is what happened to a man named Dan Horkey, but rather than let it keep him down, he found a way to pull himself up. Little did he know, he'd be pulling others up as well!
Horkey lost the lower half of his leg to a motorcycle accident in 1985. Like many amputees, he struggled with it for a while, both emotionally and physically. But around four years ago he had an idea, and it turned out to be one that many other amputees would appreciate as well.
He decided to tattoo his prosthetic, giving it a unique design that reflected his personality, rather than the manufactured materials. Not only did it give him a new look to sport around, but it changed the way he felt about and saw himself.
"The moment I put art on my socket, I stood tall and my self-esteem was higher," Horkey says. "Now I wear my prosthesis with pride."
He had such a positive response from others that he saw a business opportunity and now provides this service for other amputees. GTOPI (Global Tattoo Orthotic Prosthetic Innovations) now provides custom air brushing and tattooing of prosthesis for people around the world. (GTOPI 2981 Lowren Loop, Port Orchard, WA 98366 phone: (360) 895-1976, (360) 895-1976 ).
From veterans to children and the elderly, Horkey's idea of giving prosthetics more of a unique look has caught on. From customer characters and pets and animals to military insignia and tattoo drawings, there is practically no design that can't be added to a prosthetic. People love the idea of being able to have their prosthesis match their identity, giving people something to really look at and admire.
"My mission is to help fellow amputees fit in by standing out," Horkey adds. "Applying artwork to prosthetics and orthotic braces gives me the feeling I'm making a difference helping other amputees and those who wear orthopedic braces regain self-esteem and pride, enhancing the quality of lives."
Additionally, there are a variety of other options available in prosthesis covers and sleeves, all which give people the opportunity to create a unique look that represents their lifestyle. One visit to the Amputee Supplies online store (4470 West Sunset Boulevard Suite 430 Los Angeles, CA 90027 Email:firstname.lastname@example.org) will turn up a variety of cosmetic sleeve covers, for example. (see the link area for more sleeve resources)
The variety of prosthesis covers ( and sleeves is growing, with a variety of gel sleeves, gel liners, laminated sleeves, prosthetic art, and others readily available. (see the link resource section for a listing of providers)
We hope that you have found this comprehensive amputee resource page to be helpful. You should be able to use this as a starting point to making the contacts you need. Please feel free to pass this on, as well as drop us some feedback at . We would love to hear from you and we wish you all the success on this chapter of your life and on your journey!
"Believe you can and you're halfway there." -- Theodore Roosevelt
Seek out a specialist doctor for Pain and an Acupuncturist
Locate a Psychologist and/or Psychiatrist to assist with emotional components, and also seek counseling for family members and caregivers
Find a local Prosthetist familiar with all of the latest prostheses and innovations
Locate a Physical Therapist and/or Occupational Therapist with experience with amputees
Connect with a social worker from a local hospital or university and/or a patient advocate from patient advocate organizations
Line up and get transportation assistance such as buses or rides from organizations to ensure making medical appointments
Identify and join local and national groups of amputees
Seek out Internet groups of amputees and mailing lists, and join them and participate with other amputees
Determine prosthesis insurance coverage and seek assistance for that as needed from federal, state, and local government and private foundations and organizations
Apply for Social Security and State Disability Insurance to assist with financial needs
Develop a personal plan to deal with stress and anxiety including a healthy diet, proper nutrition, relaxation, meditation, yoga, observing nature, hobbies, and listening to music
Choose a sport that interests you such as golfing, running, bicycling, swimming, diving, skiing, or the many others, and locate a group of amputees or disabled that assists
Get involved with a local church, temple or other religious group or organization. Develop a relationship with local clergy
Set personal activity, education, and career goals and keep to
Funding, Insurance and Payment Sources
National Amputation Foundation - Providing assistance, support, and funding for both military and civilian amputees. 40 Church Street Malverne, NY 11565 Phone: (516) 887-3600, (516) 887-3600 Fax: (516) 887-3667 Email: email@example.com
Shriners Hospital for Children - a non-profit hospital that provides services that are covered through donations. 2900 Rocky Point Dr. Tampa, FL 33607. Phone: (813) 281-0300, (813) 281-0300 . Email: firstname.lastname@example.org
Pain Management and Relief
American Pain Foundation - organization providing support, and advocates for people who are affected by pain. 201 North Charles Street, Suite 710 Baltimore, Maryland 21201. Phone: (866) 615-7246, (866) 615-7246 . Email: form on site.
American Pain Society - a group that works with a diverse group to help provide pain management information. 4700 W. Lake Ave. Glenview, IL 60025. Phone: (847) 375-4715, (847) 375-4715 . Email: email@example.com
CEPM - Centers for Excellence in Pain Management - provides a multi-disciplinary approach to chronic pain management. 1501 North Placentia Ave. Placentia, CA 92870. Phone: (714) 223-7000, (714) 223-7000 . Email: None
Center for Brain and Cognition - research center at the University of California, San Diego that helps with the mirroring technique to address phantom pain. Mandler Hall, UC San Diego 9500 Gilman Drive La Jolla, CA 92093. Phone: 858-534-6240, 858-534-6240 . Fax: 858-534-7190. Email: firstname.lastname@example.org
Farabloc - Provides a drug free route to pain management, using an electromagnetic shielding fabric. 211-3030 Lincoln Avenue Coquitlam, British Columbia Canada V3B 6B4. Phone: (866) 941-4711, (866) 941-4711 . Email: email@example.com
National Pain Foundation - organization that helps make the connection between those that experience pain and those who can help. 300 East Hamden Ave., Suite 100, Englewood, Colorado 80113. Phone: (866) 590-PAIN, (866) 590-PAIN . Email: Info@NationalPainFoundation.org
Non-Profit with Funding Assistance
The Barr Foundation - a non-profit organization established to assist amputees with prosthetic rehabilitation. 136 NE Olive Way Boca Raton, FL 33432. Office: (561) 391-7601, (561) 391-7601 Fax: (561) 391-7601. Email: firstname.lastname@example.org
Patient Advocate Foundation - they help patients with healthcare access and insurance issues. 421 Butler Farm Road, Hampton, VA 23666. Phone: (800) 532-5274, (800) 532-5274 . Email: email@example.com
Wiggle Your Toes Foundation - dedicated to helping Amputees and their families regain independence and mobility. PO Box 385141 Bloomington, MN 55438. Phone: 952-221-0500, 952-221-0500 Email: Info@wiggleyourtoes.org
Miracle Limbs Courage in Motion - provides support to fellow amputees that they may easily navigate the physical, psychological & financial hurdles of losing a limb.6017 Pine Ridge Rd, Suite 303 Naples, FL 34119. Ph: 239-591-8393, 239-591-8393 Cell: 239-571-4956, 239-571-4956 Email: firstname.lastname@example.org
Direct Relief USA-nonprofit working with more than 1,100 clinics in all 50 states,providing them with free medications & supplies for their low-income & uninsured patients.27 S. La Patera Lane,Santa Barbara,CA 93117.Phone:805-964-4767Fax:805-681-4838, 805-681-4838 Email: email@example.com
Mobility International USA (MISU)-a cross-disability organization serving those with cognitive, hearing, learning, mental health,physical,systemic,vision.132 E. Broadway, Suite 343 Eugene, Oregon 97401 USA. Phone:(541) 343-1284, (541) 343-1284 Fax: (541) 343-6812
AmpSurf - a Non-Profit Organization to Promote, Inspire, Educate, and Rehabilitate people with disabilities, through adaptive surfing & fun safe outdoor activities. P.O. Box 5045 San Luis Obispo, CA 93403 Phone: (805) 744-8622, (805) 744-8622 Email: firstname.lastname@example.org
Mutual Amputee Aid Foundation (MAAF) - service organization devoted to provide peer-level support and information to individuals who have undergone, or are about to undergo, amputation surgery in LA area. P. O. Box 90261 Los Angeles, CA 90009 (877) 267-8828
Area Amputees On The Go - to bring together and educate those with limb loss in Billings and the surrounding area. Our group also welcomes families and friends. P. O. Box 20081 Billings, MT 59104 Phone: (406) 655-4444, (406) 655-4444 or (406) 254-2520, (406) 254-2520
Orthotic and Prosthetic Assistance Fund-Enabling individuals served by the orthotic & prosthetic community to enjoy the rewards of personal achievement, physical fitness & social interaction. 536 Sunset Rd Waterloo, Iowa 50701. Tel: 319-235-4318 Fax: 319-235-4326 Email: email@example.com
Exercise, Training and Sports
The National Center on Physical Activity and Disability. Information on physical activity, fitness, recreation, and sports for any disability. 1640 W. Roosevelt Rd. Chicago, IL 60608-6904. Phone: (800) 900-8086, (800) 900-8086 . Fax: (312) 355-4058. E-mail: firstname.lastname@example.org
The Challenged Athletes Foundation - athletic greatness inherent in people with physical challenges and providing unparalleled sports opportunites. 9591 Waples Street, San Diego, CA 92121. Phone: 858-866-0959, 858-866-0959 . Email: email@example.com
oandp.com - Resource for Orthotics & Prosthetics Information - Five Steps for the Introduction to Lower Limb Amputee Running. 6800 NW 9th Blvd, Suite 3 Gainesville, Florida 32605. Toll Free: 800-876-7740, 800-876-7740 Fax: (352) 332-8074 Email: firstname.lastname@example.org
AK Training Series - information for those who want to learn more about the training techniques that we utilize in our protocol. Gait Training - for above Knee Amputees. Phone: 631-563-4550, 631-563-4550 Email: email@example.com
Prosthetic Solutions - improving the lives of amputees by giving them the chance to participate in an active life style with state of the art prosthesis. 191 San Felipe Road, Suite M-1 Hollister, CA 95023. Phone: 831-637-0491, 831-637-0491 Fax: 831-637-1977. Email: firstname.lastname@example.org
Disabled Sports Eastern SIERRA - dedicated to changing the lives of children and adults with disabilities and their families, offering year-round outdoor sports and activities. PO Box 7275 Mammoth Lakes, CA 93546-7275. Phone:760-934-0791, 760-934-0791 Fax:760.934-0729 Email: email@example.com
National Amputee Golf Association - small group of amputee golfers who played friendly games that quickly developed into regional tournament play in various cities across the United States. National Amputee Golf Association 11 Walnut Hill Rd Amherst, NH Email: firstname.lastname@example.org
MTB - Amputee - Mountain Bike Amputee is an informal organization of amputee mountain biking and cycling enthusiasts that was created by Victor Walther. Phone: (250) 754-6362, (250) 754-6362 Email: email@example.com
TAASC - The adoptive Adventure Sports Coalition, offer individuals with disabilities opportunities to participate in adventure activities. 6000 Harriot Rd, Powell, Ohio 43065 Phone: 614. 940. 1295 Email: firstname.lastname@example.org
Eastern Amputee Golf Association EAGA - o assist in the rehabilitation of amputees & provide for their general welfare, both physical & psychological, through the medium of golf.2015 Amherst Drive Bethlehem, PA 18015-5606 Phone:888-868-0992Fax:610 867 9295, 610 867 9295 Email: email@example.com
New England Handicapped Sports Association (NEHSA) - To sponsor and deliver outdoor recreational activities in a social atmosphere - Make it Fun! PO Box 2135 Newbury, NH 03255-2135 Phone: 603-763-9158, 603-763-9158 Phone: 603-763-4400, 603-763-4400 Email: firstname.lastname@example.org
Youth Camps and Activities
ACA Youth Camp - Amputee Coalition of America. 900 East Hill Ave. Suite 285 Knoxville, TN 37915-2568. Camp for kids ages 10-16. Phone: (888) 267-5669 ext. 8130. Fax: (865) 525-7917. E-mail: email@example.com
Adventure Amputee Camp - to encourage children with amputations or limb differences to stretch their potential and imagination, and explore all that is possible. c/o Missy Wolff-Burke 176 Saddleback Lane Winchester, VA 22602. Phone: (703) 568-0064, (703) 568-0064 . Email: firstname.lastname@example.org
International Amputee Child Network (I-CAN) - is dedicated to promoting education, support, information, and empowerment to traumatic and congenital limb different children and their families. P O Box 514 Abilene, TX 79604-0514 Phone: None listed. Email: email@example.com
Federation For Children with Special Needs -a center for parents & parent organizations to work together on behalf of children with special needs & their families.1135 Tremont St, Suite 420 Boston, MA 02120 Phone: (617) 236-7210, (617) 236-7210 Fax: (617) 572-2094 Email: firstname.lastname@example.org
Camp Simcha - For Children with Cancer, Hematologic, or other Serious Diseases including Amputees, Camp Office Phone 845-856-1432, Fax 845-858-8388. Rabbi Avrohom Kustlinger, Director, Phone 212-699-6672 Email: Camp@Chailifeline.org
Government and Agencies
Social Security - applying for disability for an adult. Social
Office of Public Inquiries Windsor Park Building 6401 Security Blvd. Baltimore, MD 21235. Phone: (800) 772-1213, (800) 772-1213 . Email: none listed.
Social Security - applying for disability for a child. Social
Office of Public Inquiries Windsor Park Building 6401 Security Blvd. Baltimore, MD 21235. Phone: (800) 772-1213, (800) 772-1213 . Email: none listed.
California Department of Rehabilitation - find a local office to apply for disability and get information. P.O. Box 944222 Sacramento, CA 94244. Phone: (916) 324-1313, (916) 324-1313 . Email: email@example.com
The Prosthetic and Orthotic Parity Act - Amputee Coalition of America. 900 East Hill Avenue, Suite 205, Knoxville, Tennessee 37915-2566 Phone:: 865/525-4512, 865/525-4512 Email: Dan@amputee-coalition.org
Office of Victims of Crime (OVC) - to enhance the Nation's capacity to assist crime victims and to provide leadership in changing attitudes, policies, and practices to promote justice and healing. Phone: 202-307-5983, 202-307-5983 Fax: 202-514-6383
Arms and Legs Are Not a Luxury - reinforcing the Amputee Coalition of America's simple message to Insurance companies and members of Congress. 900 East Hill Avenue, Suite 205, Knoxville, Tennessee 37915-2566. Phone: (865) 525-4512, (865) 525-4512
National Amputation Foundation (NAF) - Offers valuable assistance to veterans and civilians amputees. 40 Church Street Malverne, NY 11565. Phone: (516) 887-3600, (516) 887-3600 Fax: (516) 887-3667. Email: firstname.lastname@example.org
Rolling Start's Mission - empowers and educates people with disabilities to achieve the independent life of their choice. 570 West 4th Street, Ste #107, San Bernardino, CA 92401. Phone: 909-884-2129, 909-884-2129 Fax: 909-386-7446. Email: email@example.com
Riverside Network of Care - A highly interactive info. place where consumers, community-based organizations and municipal gov't workers can easily access a variety of info.1101 Fifth Ave, Suite 250 San Rafael, CA 94901 Phone:415-458-590 Fax:415-256-9036 Email: firstname.lastname@example.org
Community Access Center (CAC) - empower persons with disabilities to control their own lives, create an accessible community. 6848 Magnolia Avenue, Suite 150, Riverside, CA 92506. Phone: (951) 274-0358, (951) 274-0358 Fax: (951) 274-0833 Email: email@example.com
Americans with Disability Act (ADA)-Information & Technical Assistance on Americans with Disability. U.S. Dept. of Justice 950 Pennsylvania Ave, NW Civil Rights Division Disability Rights Section-NYA Washington, D.C. 20530. Phone (800)514-0383 Fax(202)307-1197
Social Security Administration - U.S. Special Security Administration. Social Security Administration Office of Public Inquiries Windsor Park Building 6401 Security Blvd. Baltimore, MD 21235. Phone: 1-800-772-1213, 1-800-772-1213 Toll Free: 1-800-325-0778, 1-800-325-0778 .
Hospitals, Therapy, Treatment, Rehabilitation and Facilities
Amputee Treatment Center - Providing the finest prosthetic and orthotic care and the latest technology for individuals with amputations and physical disabilities. 8388 Lewiston Road Batavia, NY 14020. Phone: (585) 343-4154, (585) 343-4154 Fax: (585) 343-8101 Email: firstname.lastname@example.org
Redlands Community Hospital - 205-bed facility located in Southern California, mid-way between Los Angeles and Palm Springs. We've been providing quality healthcare to our neighbors in Redlands. 350 Terracina Blvd Redlands, CA 92373. Phone: (909)335-550
Ballard Rehabilitation Hospital - offering innovative care and treatment to adults and children with physical disabilities and chronic disabling conditions. 1760 West 16th Street San Bernardino, CA 92411. Phone: (909) 473-1200, (909) 473-1200 . Email: email@example.com
MossRehab ResourceNet - MossRehab Hospital, offers 152-bed facility, offers comprehensive care to people with a broad range of conditions. 1200 West Tabor Road Philadelphia, PA 19141. Phone: 1-800-CALL MOSS, 1-800-CALL MOSS Email: firstname.lastname@example.org
St. Vincent Health - St. Vincent Hospital - St. Joseph Physical and Sports Therapy developed this program with the Amputee Coalition of America for amputee survivors and their families. 2130 West Sycamore Street Kokomo, IN 46901 (765) 236-8500
Assistive Technology Research Clinics at Stanford - application of Assistive Technology (AT) & Augmentative Communication (AAC) treatment to improve the lives of adults & children with disabilities. 1023 Corporation Way Palo Alto, CA Phone:(650) 237-9249, (650) 237-9249 Email: KeTran@stanfordmed.org
The Barr Foundation - a non-profit organization established to assist amputees with prosthetic rehabilation. 136 NE Olive Way Boca Raton, FL 33432. Office: (561) 391-7601, (561) 391-7601 Fax: (561) 391-7601. Email: email@example.com
Advanced Prosthetics Center - can provide members of the limb loss population with the most advanced rehabilitation and prosthetic care available. 9109 Blondo Street Omaha, NE 68134. Phone: 402-399-9993, 402-399-9993 Fax: 402-778-9739
American Academy of Orthotists & Prothetists - Professionals Advancing Care Through Knowledge. 1331 H Street NW, Suite 501, Washington DC, 20005. Ph: (202) 380-3663, (202) 380-3663 - Fx: (202) 380-3447. Email: firstname.lastname@example.org
Sampson's Prosthetics & Orthotic Laboratory - Amputee Outreach, re-empowers amputees and help them to be successful in adapting physically to their new lives. 1737 State Street Schenectady, NY 12304. Phone: (518) 374-6011, (518) 374-6011 Fax: (518) 393-3292
The American Board for Certifications in Orthotics, Prosthetics & Pedothics-national certifying & accrediting body for the orthotic,prosthetic & pedorthic professions.330 John Carlyle St,Suite 210 Alexandria, VA 22314. Tel:(703) 836-7114, (703) 836-7114 Fax:(703)836-0838 Email: email@example.com
Advanced Rehabilitation Therapy - Educational Resources, We are a company that is owned by clinicians, represents clinicians and serves clinicians. 7641 SW 126 St, Miami, FL 33156. Toll Free: (800) 610-4278, (800) 610-4278 Fax: (305) 378-4107 Email: firstname.lastname@example.org
NCOPE National Commission on Orthotic & Prosthetic Education - the accreditation body for the orthotics and prosthetics (O&P) profession. 330 John Carlyle St., Ste. 200 Alexandria, VA 22314 Phone: 703-836-7114, 703-836-7114 Fax: 703-836-0838 Email: email@example.com
Prosthesis Covers, Sleeves, and Art
Global Tattoo Orthotic Prosthetic Innovations - provides unique art design work for prosthetics. 2981 Lowren Loop, Port Orchard, WA 98366. Phone: (360) 895-1976, (360) 895-1976 Email: firstname.lastname@example.org
Support Group, Community, Associations & Organizations
Amputee Support Group of Kingsburg - support group for those who have had amputations and their caregivers and families can come to share similar experiences and obtain information. 2460 15th Avenue Kingsburg, California 93631. Phone: (209) 897-2321, (209) 897-2321
Functional Amputee Support Team (FAST) - Provide support and encouragement to new amputees and their families. P. O. Box 7373 Orange, CA 92863-7373. Phone: (714) 284-5566, (714) 284-5566 . Email: email@example.com
Stumps 'R Us - A Whimsical Support Group of Cheerful Cripples Who Can Answer almost ANY question you might have about life without one, two, three or four limbs. Stumps R Us 2109 Skycrest Drive, Apartment 1 Walnut Creek, CA 94595. Email: DanSorkin@stumps.org
Amputees in Action - Educational organization serving as a social emotional support group for people experiencing amputation. 4800 Alberta Ave El Paso, TX. Phone: (915) 822-1624, (915) 822-1624 . Email: SunCityAmp@aol.com
Inland Empire Disabilities Collaborative - Promote Equal Opportunity, Universal Access, and Full Participation of People With Disabilities In All Aspects of Life. P.O. Box 11845 San Bernardino, CA 92423. Phone: 909-890-5833 909-890-1623 for TTY users Email: firstname.lastname@example.org
Helping Hands Foundation - Providing Support, sharing experiences, and supplying information to families of children with upper limb differences. P.O. Box 332 Medfield, MA 02052. Email: email@example.com
NYU Langone Medical Center (Rusk Institute of Rehabilitation Medicine) - Amputee Support Program. 400 E. 34th St. Ground Floor, RG-33 New York, NY 10016. Phone: 212-263-6098, 212-263-6098 Email: firstname.lastname@example.org
Sarasota Amputee Support Group - Our goal is to enrich the lives of amputees and help them to reach their full potential. The tools we use are peer support, education and activism. HealthSouth 6400 Edgelake Drive Sarasota, FL 34240 Phone: (941) 921-8600, (941) 921-8600 Email: email@example.com
Central Iowa Amputee Support Group - provides a centralized person to person contact mechanism for people who suffer from amputation for the purposes of early education. 5110 Franklin Avenue • Des Moines, IA 50310. Phone: 641-864-2257, 641-864-2257
The Round Rock Amputee Support Group - St. David's Medical Center 2400 Round Rock Ave. Round Rock, TX 78681 in the Education Classroom 1&2 Contact person: Frieda Borth Phone: 512-791-8864, 512-791-8864 Email: firstname.lastname@example.org
Amputee Support Group of Northern Virginia-The group meets on a monthly basis to discuss issues involved in losing a limb, financial concerns, relationships & employment changes. c/o B. E. Harris 6316 Sumerduck Rd., Remington, VA 22734-2308 Phone:540-439-3656, 540-439-3656 Email: email@example.com
The Dallas Amputee Network (DAN) - Serving the greater and North Texas amputee community. 1303 Green Meadow Richardson, TX 75081. Phone: 972-470-0505, 972-470-0505 Fax: 972-390-1124 Email: firstname.lastname@example.org
Acadiana Amputee Support Group - provide peer to peer visits with other amputees or prospective amputees. 204 Nicole Drive Youngsville, LA 70592. Phone: (225)715-9581, (225)715-9581 Email: email@example.com
Easter Iowa Life - Amputee support - Group forming in Iowa City to share challenges, opportunities. Access 2 Independence, 381 E. College St., Iowa City. Phone: (319) 541-3535, (319) 541-3535 Email: firstname.lastname@example.org
Delaware Amps - The Amputee Support Group of Delaware provides new and long term amputees with the information, news, resources, and support in Delaware. Phone: (302) 778 - 2227, (302) 778 - 2227 Email: AmputeeSGofDE@aol.com
DukeHealth.org - Triangle Amputee Support Group (TAS), Join this group to learn, share experiences, and gain valuable insights from other amputees dealing with similar challenges. 3000 Erwin Road Durham, NC. Phone: 919-684-3733, 919-684-3733 Email: email@example.com
Unlimiited Possibilities - s a community where families of children with upper limb differences can gather to offer support and share information. P.O. Box 595 North Bellmore, New York 11710 Email: firstname.lastname@example.org
Challenged Athletes Foundation - provides opportunities and support to people with physical disabilities. 9591 Waples Street, San Diego, CA 92121 Phone: 858.866.0959, 858.866.0959 | Fax: 858.866.0958 Email: email@example.com
Lehigh Valley Health Network - Stories About Our Passion: She Supports Amputees. Cedar Crest & I-78, P.O. Box 689, Allentown, PA 18105-1556 Phone: 610-402-CARE Toll Free: 1-888-LVH-CARE, 1-888-LVH-CARE
National Organization on Disability - We provide technical assistance to public agencies, foundations, employers, and employment service providers. 5 East 86th Street New York, NY 10028 Phone: 646.505.1191, 646.505.1191 Email: firstname.lastname@example.org
Chai LifeLine - Providing assistance, advocacy, and support for children with cancer, hematologic, or other serious diseases including amputees, Phone 212.465.1300, Fax 212.465.0949, Toll Free 877.CHAI LIFE, Main Office Address: 151 West 30th Street, New York, NY 10001 Email: email@example.com
Independence Through Enahancement of Medicare and Medicaid Coalition - raising awareness and building support. to assistive devices & technologies. 1875 Eye Street, NW, 12th Floor Washington, DC 20006 Telephone: (202) 349-4260, (202) 349-4260 Fax: (202) 785-1756 Email: firstname.lastname@example.org
American Association of People with Disabilities (AAPD) - the largest national non profit cross-disability member organization in the USA. 1629 K Street NW, Suite 950 Washington, DC 20006 Phone: 202-457-0046, 202-457-0046 Fax: 202-457-0473
CMLSG Central Massachusetts Limb Loss Support Group - to reach out to people with limb loss and provide a supportive environment where information and experiences are shared and friendships are formed. Email: Info@CentralMALimbLoss.org
Doctors Without Borders-international medical humanitarian organization working in 70 countries to assist people whose survival is threatened by violence,neglect,catastrophe.333 7th Ave,2nd Floor New York, NY 10001-5004 Phone:212-679-6800Fax: 212-679-7016, 212-679-7016
Disabled People's International-network of national organizations or assemblies of disabled people,established to promote human rights of disabled people.Suite 188,38 Pearson Street,St. John's,Newfoundland A1A 3R1 CANADA Phone:709-747-7600Fax:709-747-7603, 709-747-7603 Email: email@example.com
PATH International - "Ensuring excellence and changing lives through equine-assisted activities and therapies." 7475 Dakin Street Suite #600 Denver, CO 80221 Phone: (800) 369-RIDE, (800) 369-RIDE (7433) Fax: (303) 252-4610
Healthcare Credit Financing
CareCredit - offers healthcare financing for consumers, simple way to consolidate and manage certain out-of-pocket healthcare expenses. PO Box 960061 Orlando, FL 32896-0061. Phone (800) 677-0718, (800) 677-0718
Blogs, Articles, Disability Forum
Volunteers for Inter-American Development Assistance - serving underprivileged communities in Latin America since 1991. 6251 Hollis Street Emeryville, California USA 94608. Phone: 510 655 8432, 510 655 8432 Fax: 510 655 8281 Email: firstname.lastname@example.org
Central American Medical Outreach (CAMO) - s a humanitarian-aid organization. 322 Westwood Avenue Orrville, OH 44667, USA . Phone: (330) 683-5956 | (330) 313-1000, (330) 313-1000 Fax: (330) 313-1001 Email: email@example.com
Inspiring Success Stories
Jothy Rosenberg, an amputee and very successful entrepreneur, athlete,
author, and speaker. Email:jothy AT whosaysicant.net , Phone:(617)
306-8121, Address: 11 Seton Hill Rd., Auburndale, MA 02466,
mara AT emergepr.com
Cameron Clapp - Information about a teenage triple amputee to share experiences and inspire others. Email: firstname.lastname@example.org
Tom Whittaker - s an Extreme Adventurer, Mountaineer, Motivational Speaker, Teamwork and Leadership Trainer, University Professor, Human Achievement Specialist, Author, Philanthropist. 1105 Paar Drive Prescott, Arizona 86305 Phone: 602-541-0456, 602-541-0456 Email: email@example.com
MCPSPEAKERS.COM - Warren MacDonald, Keynote Speaker, Motivational Speaker, Mountain Climber, Amputee. 407 Chotem Rise, Saskatoon, SK, Canada S7N 4M4 Phone: 306-382-0330, 306-382-0330 Fax: 306.382.8435 Email: firstname.lastname@example.org
The Texas Speakers Bureau - Dana Bowman - Texas Inspirational Speaker and Double Leg-Amputee, Speaker in Texas. Phone: 1.877.8.TALENT, 1.877.8.TALENT (1.877.882.5368, 1.877.882.5368 ) Email: email@example.com
Disability Speaker, Keynote Speakers on Disability - 611 South Palm Canyon Drive, Suite 7466 Palm Springs, CA 92264 Phone: 1-760-673-7700, 1-760-673-7700 Toll Free Phone (US): 1-877-717-5327, 1-877-717-5327 Toll Free Fax: (888) 489-9464 Email: firstname.lastname@example.org
Manufacturer of Prosthetic & Orthotic Devices, Drugs,
Technologies, Shoes, Typing Products and Mobility Aids
Alatheia - Prosthetics limbs for Amputees. 504 Grants Ferry Road Brandon, MS 39047 U.S.A. Tel: (877) 252-8434, (877) 252-8434 . Tel: (877) 252-8434, (877) 252-8434 . Phone: (877) 252-8434, (877) 252-8434 Email: email@example.com
Endolite: they help amputees through research, design and innovation is our commitment. Our award-winning prosthetics are all designed with one goal in mind. 1031 Byers Road Miamisburg, OH 45342 Phone: 937.291.3636, 937.291.3636 Fax: 937.291.3636 Email: firstname.lastname@example.org
Hanger Prosthetics and Orthotics - provider of prosthetics and orthotics. 10910 Domain Drive, Ste 300, Austin, TX 78758, Toll Free: 1-877-4HANGER, 1-877-4HANGER (1-877-442-6437, 1-877-442-6437 ). Email: email@example.com
OSSUR - A global leader in orthopaedics, manufacturers of award-winning prosthetics. 27051 TowneCenter Drive, Foothill Ranch, CA 92610 USA. Phone: (949) 382-3883, (949) 382-3883 Fax: (800) 831-3160. Email: firstname.lastname@example.org
Otto Bock - uses innovative technology, superior service and world class education to help people with physical mobility challenges. Two Carlson Parkway North, Suite 100 Minneapolis, MN 55447-4467. Phone: (763) 553-9464, (763) 553-9464 . Fax: (763) 519-6153. Email: email@example.com
College Park - Technology for the human race. Used biomechanical design principles to develop and manufacture a broad selection of prosthetic feet with anatomical function. 17505 Helro Drive Fraser, MI 48026 USA. Ph: 586.294.7950, 586.294.7950 Fax:586.294.0067 Email: firstname.lastname@example.org
WillowWood - Provides the prosthetic & orthotic community products that the consumers find assist them in leading a functionally normal lifestyle.15441 Scioto Darby Road P.O. Box 130 Mt. Sterling,Ohio 43143 USA.Toll Free:1.800.848.4930, 1.800.848.4930 Fax:1.888.878.4858 Email: email@example.com
Life-Like - Our mission is to, working in partnership with O&P professionals, restore self-esteem and confidence to amputees. 1544 Valwood Pkwy. · Suite 104 · Carrollton, TX 75006 PH: (972) 620-0203, (972) 620-0203 Fax: (972) 620-0204
Nascott Orthotics & Prosthetics - products are designed and custom-fit using the most advanced technology, skills and materials available in the industry. National Rehabilitation Hospital 102 Irving Street, NW Washington, DC 20010 Phone: (202) 877-1497, (202) 877-1497
Orthotic Prosthetic Technologies -is dedicated to delivering the highest quality orthotic & prosthetic service possible. 8000 Anderson Square, Ste 301A, Austin TX, 78757. Phone:512-377-2323, 512-377-2323 Fax:512-374-9993 Email: AaronForeman@OPTtexas.com
OMNI Prosthetics & Orthotics - specializes in serving patients and physicians with customized prosthetics and orthotics made in our on-site lab. 502 South Vine Urbana, Illinois. Phone: 217-344-6664, 217-344-6664 Fax: 217-344-9282
360 Orthotics & Prosthetics - provides useful information and news on Orthotics & Prosthetics to consumers, doctors, therapists, case managers and all health care individuals.5311 E. Fletcher Avenue Tampa,FL 33617.Phone:(813) 989-0360, (813) 989-0360 Fax:866-300-3881 Email: firstname.lastname@example.org
Amputee Supplies - Buy Amputee Supplies Direct, Amputee Socks, Stump Shrinkers, Ampu Balm, Dry Lite, Dura Sleeve, BK Sleeves, Limb Chaffing Skin Care. 4470 West Sunset Blvd Suite 430, Los Angeles CA 90027 Email: email@example.com
Willow Wood - they are the creator of the GeoLite Knee, among other prosthetic knees. 15441 Scioto Darby Rd. Mt. Sterling, Ohio 43143. Phone: (800) 848-4930, (800) 848-4930 . Email: firstname.lastname@example.org
National Mobility Equipment Dealers Association (NMEDA) - Automotive Mobility Solutions, Wheelchairs, Hadicap Accessible Vehicles, Mobility Equipment Dealers. 3327 West Bearss Avenue Tampa, Florida 33618 Phone: (813) 264-2697, (813) 264-2697 Fax: (813) 962-8970
Farabloc - Drug free Pain Relief, treatment for chronic and muscle related pain syndromes. 's phantom limb pain - Fibromyalgia. 211-3030 Lincoln Avenue Coquitlam, British Columbia Canada V3B 6B4Tel: 604-941-8201, 604-941-8201 Fax: 604-941-8065 Email: email@example.com
Enabling Technologies, LLC - the premiere design and manufacturing company of adaptive recreational equipment for the physically challenged individual. 2226 S. Jason St. Denver, CO 80223 USA. Toll Free 1-866-936-0232, 1-866-936-0232 or 303-936-0232, 303-936-0232 FAX 303-936-1992 Email: firstname.lastname@example.org
Motion Control Inc., is the leading U.S. manufacturer of myoelectric and externally powered prosthetic arm system. 115 N. Wright Brothers Drive Salt Lake City, UT 84116 USA. Phone: 801.326.3434, 801.326.3434 Fax: 801.978.0848 Email: email@example.com
Rehabilitation of Military Amputtes: From Injury to Independence, Ortho Super Site. 6900 Grove Road Thorofare, NJ 08086-9447 USA Telephone: + (856) 848-1000, (856) 848-1000 Fax: + (856) 853-5991 Email: editor@ORTHOSuperSite.com
Knit-Rite - a leading designer, marketer, and manufacturer of innovative textiles for medical and consumer markets. 20 Osage Avenue Kansas City, Kansas 66105. Phone: 800.821.3094, 800.821.3094 Fax: 913.281.5455 Email: firstname.lastname@example.org
Hosmer Prosthetics and Orthotics - world leader in prosthetics, manufactured the first split hook design because he was dissatisfied with the terminal devices available. 61 Division Street Campbell, CA 95008. Phone: 408 379 5151, 408 379 5151 Fax: 408 379 5263 Email: email@example.com
AbilityHub - Assistive Technology Solutions for people with a disability who find operating a computer difficult, maybe even impossible. c/o The Gilman Group, L.L.C. P.O. Box 6356 Rutland, VT 05702-6356, U.S.A. Phone: (802) 775 1993, (802) 775 1993 Fax: (802) 773 1604 Email: firstname.lastname@example.org
Information, Research and Study
UCSF Limb Study - a study to identify the genetic causes of limb malformations. Dr. Nadav Ahituv,Ph.D. Institute for Human Genetics UCSF 513 Parnassus Avenue,Box 0794 Health Sciences East,901H San Francisco, CA 94143 Phone:415-476-1838, 415-476 1838 Fax: 415-502-0720 Email: email@example.com
Kentucky Prosthetics & Orthotics - Information concerning the phases of Above Knee prosthesis fitting, covering amputation, fitting, and training, etc. 339 S. Preston Street Louisville, KY 40202. Phone: 502.585.4228, 502.585.4228 Email: firstname.lastname@example.org
The Sky's the Limit for Airborne Amputees By: Elaine Reeder Mayo Published: May 1, 2010 The Sky's the Limit for Airborne Amputees, Wounded Warriors and ACA Members - Amputee Coalition of America. Phone: 713-747-7647, 713-747-7647
First Step - A Guide for Adapting to Limb Loss - Orthopedics, Orthopedic Surgery, Orthopedic Web Links. 198 Waddington Drive Kamloops, BC V2E 1M4 Phone: (250) 374-2948, (250) 374-2948 Email: email@example.com
Arm Amputee Video - Offers practical solutions to problems encountered by arm amputees. Art Heinze Dynamic Rehab Videos 307 Spruce Avenue South Thief River Falls, MN 56701. Home Phone: (218) 681-1624, (218) 681-1624 Cell: (218) 689-2700, (218) 689-2700 Email: ArtHeinze@gmail.com
National Center for Biotechnology Information (NCBI) - Article on Nursing's role with amputee support groups. National Center for Biotechnology Information National Library of Medicine Building 38A Bethesda, MD 20894. Toll free: (1-888-346-3656, 1-888-346-3656 ) Email: firstname.lastname@example.org
New Mobility - community of wheelchair users who wanted more information on how to lead active, healthy lives. No Limits Communications Inc. P.O. Box 220 Horsham , PA 19044 Phone: 215/675-9133, 215/675-9133 Fax: 215/675-9376
Life Disability Tips
Friends of Bethany - Amputee Coalition does survey of people with limb loss to better understand the health insurance issues they face & how their insurance needs can be met. PO Box 223663 Princeville, HI 96722. Phone: (808) 634-7191, (808) 634-7191 Fax: (815) 550-215
Armed Forces Institute of Regenerative Medicine (AFIRM) - a multi-institutional, interdisciplinary network working to develop advanced treatment options for our severely wounded servicemen and women.ATTN:MCMR-RTR 504 Scott Street Ft. Detrick,MD 21702-5012 Email: email@example.com
Wake Forest Baptist Medical Center-Wake Forest Institute for Regenerative Medicine (WFIRM) leader in translating scientific discovery into clinical therapies. Medical Center Boulevard Winston-Salem, N.C. 27157 Phone: 336-316-2011, 336-316-2011 Email: firstname.lastname@example.org
Civil War Amputation
Types of Amputation
Reason for Amputation
Military and Veteran Amputees
"Military Amputees to Get Free Service Dogs"- Veterans Advantage is a national program that partners with corporations that want to do their part to honor & thank all who serve our country.#338 4410 Massachusetts Ave NW Washington, DC 20016Phone866-838-2774
Deputy Chief of Staff, Army G-1 - develop, manage and execute all manpower and personnel plans, programs and policies - across all Army Components - for the entire Army team. 300 Army Pentagon Washington, DC 20310-0300. TOLL FREE: 1-800-342-9647, 1-800-342-9647 Email: email@example.com
Army Times - Army Amputee thrown from roller coaster, dies. Gannett Government Media 6883 Commercial Dr. Springfield, Va. 22159-0500 USA 1-800-368-5718, 1-800-368-5718 or 1-703-750-7400, 1-703-750-7400 Email: firstname.lastname@example.org
OOHRAH.net; Military Amputee Care Program designed to provide our Warriors with the latest information on our patient care program, advances in prosthetics, ongoing research efforts and upcoming activities and events. Email: email@example.com
Walter Reed Army Medical Center - they have specialty clinics, including one for amputees. 6900 Georgia Ave NW, Washington DC 20307. Phone: (202) 782-6866, (202) 782-6866 . Email: WRAMCPatientAdvocate@amedd.army.mil
Motorcycle Amputee - an informal website based organization created by Victor Walther. The website is intended to provide information, encouragement, and inspiration for amputee, injured, and physically challenged motorcyclists. Email: firstname.lastname@example.org
Doctors Without Borders - group works in 70 countries providing needed medical care. 333 7 th Avenue 2 nd Floor New York, New York 10001-5004. Phone: (212) 679-6800, (212) 679-6800 . Email: mailto:email@example.com
Amputees Federation of New Zealand Inc. - provides information for new amputees in particular but also gives ongoing support and up-to-date information for all amputees & their families.213A Bay View Rd St Clair Dunedin.Phone(03) 455-6347 Fax(03) 455-9547 Email: firstname.lastname@example.org
Northern Alberta Amputee Program-"Improving the lives of amputees". Franklin Fund c/o Division of Physical Medicine and Rehabilitation Room 1226,10230-111 Ave Edmonton, Alberta T5G0B7 Phone: (780) 735-8870, (780) 735-8870
Amputee Ireland - IS TO EMPOWER AMPUTEES TO ACHIEVE INDEPENDENCE, PARTICIPATION, SOCIAL AND OCCUPATIONAL INTEGRATION IN THE LIFE OF THE COMMUNITY. Amputee.ie 15 College Green Dublin 2 Email: email@example.com
BLESMA (The Limbless Veterans) - help them realise that there is life after amputation. Blesma 185-187 High Road Chadwell Heath Romford Essex RM6 6NA. Phone: 0208 590 1124 Fax: 0208 599 2932 Email: firstname.lastname@example.org
British Columbia Amputee Golf Association (BCAGA) - welcome and encourage all new amputees to join us in playing the game of golf. Mayfair Lakes Golf & Country Club 5460 No. 7 Road, Richmond BC, Canada V6V 1R7. Phone: 604 771 8044, 604 771 8044 Email: email@example.com; firstname.lastname@example.org
Amputees and Families Support Group Qld Inc.-provide much needed support & encouragement to amputees & their families from pre-amputation through rehabilitation. Cnr Cinderella Dr and Vanessa Blvd, Springwood, QLD, 4127.Phone:(07) 32904293 Fax:(07) 32904293
Lehigh Valley Health Network - Stories About Our Passion: She Supports Amputees. Cedar Crest & I-78, P.O. Box 689, Allentown, PA 18105-1556 Phone: 610-402-CARE Toll Free: 1-888-LVH-CARE, 1-888-LVH-CARE
The War Amps- helping child amputees and their families from the very start, with financial assistance for artificial limbs, peer support, regional seminars & programs. 2827 Riverside Drive Ottawa, ON K1V 0C4 Phone: 613 731-3821, 613 731-3821 Fax: 613 731-3234 Email: email@example.com
Access 2 Entertainment - Partners in the disability community are the essential vehicle for promoting the program. c/o Easter Seals Canada 40 Holly St, Suite 401 Toronto, Ontario M4S 3C3. Phone: (416) 932-8382, (416) 932-8382 x227 Email: firstname.lastname@example.org
Limbkids Support Association Inc. - Provide understanding, support and encouragement to new parents. Provide information regarding limb deficiencies. PO Box 244 West Burleigh QLD 4219 AUSTRALIA. Phone: +61 7 5533 9754, +61 7 5533 9754
Australian Rehabilitation & Assistive Technology Assoc. (ARATA) - a national association whose purpose is to serve as a forum for issues in rehabilitation and assistive technology. Michael Berryman - Email: email@example.com
Vancouver Coastal Health - GF Strong Rehab, Support & Education Group, We are a cross-section of ages, occupations, life situations, and levels of amputation. GF Strong Rehab Centre 4255 Laurel St. Vancouver, BC V5Z 2G9. Phone:604.734.1313, 604.734.1313 voice box #8931 Email: Linda.Mclaren@vch.ca
vascular.co.nz - Amputations and amputation surgery, indications, types of surgery and complications of amputation. Devon Medical Centre 283 Devon St West PO Box 461 New Plymouth. Phone: 06 759 1888 Fax: 06 759 7413 Email: firstname.lastname@example.org
England Amputee Football Association - aim is to provide all amputees, people with congenital limb deficiencies and persons with restricted use of limbs, with the opportunity to play football locally, nationally and internationally. Email: fdo@theEAFA.co.uk
The Disability Football Club Directory - is to share information and to increase awareness of footballing opportunities for disabled people. c/o Mark Summers 17 Marston Road Tockwith York North Yorkshire YO26 7PR. Phone: 01423 358485 Mobile: 07940 509757 Email: email@example.com
The UK Limb Loss Information Centre - a website, designed to be a central resource of information for amputees, individuals with congenital limb absence, friends, family, careers and healthcare professionals. Email: firstname.lastname@example.org
OrthoEurope - offers a comprehensive range of prosthetic components and associated products used for the manufacture of artificial legs and artificial arms. Phone: +44 (0)1420 83294, +44 (0)1420 83294 Email: email@example.com
Warmest Regards....Barry Sugarman, B.S.ENGR., President
The Cure Our Children Foundation
Phone: 310-355-6046, 310-355-6046